15
Mar 25

Grieving a Teen’s Mental Diagnosis

Relapse.jpg“If you find you cannot stop grieving, try to choose a time of day to release your feelings.”

Many parents grieve after the shock of hearing that their teen has a mental diagnosis. It’s hard to accept that our dreams and expectations for our child may have changed. In our modern society, we are used to planning everything from our vacations to our retirement. It lowers our anxiety level to know what to expect. But the prognosis for our son or daughter may be impossible to guess.

When we grieve, we experience denial and isolation, bargaining, depression, and anger before we reach acceptance. These stages occur out of order and may recur, even after we have achieved acceptance.

Denial

For many parents, denial is the first reaction. We cannot believe that our bright, outgoing, creative, or otherwise wonderful child will never be the same again. When my daughter was diagnosed with schizophrenia at age fourteen, my husband and I briefly convinced ourselves that she was faking it. The fantasy lasted only a day, but I’ll never forget the desperate lengths our minds went to in order to cope with the news at that moment. If you find yourself struggling with denial, have compassion for yourself and let it run its course. In time, your mind will find it easier to accept.

Isolation

Complicating the grief process is the fact that many of our peers do not understand what we are going through. Friends will not walk up to us and say, “I’m sorry for your loss,” the way they would under normal mourning circumstances. They may be afraid of saying the wrong thing, making it difficult for us to find someone to talk to and leaving us feeling isolated. At such times, our spouse can be a great comfort. All we have to hear, or say, during tough moments is, “I know, honey.” We all need to feel understood. A support group can be helpful, especially if you get to know someone in a similar situation. The NAMI Family to Family class will not only give you information about mental illness, but it will introduce you to other families who understand. Look for one in your area.

Bargaining

When my son was diagnosed with bipolar disorder, also at age fourteen, I deeply regretted all of the opportunities I had missed to help him sooner. I mentally negotiated, picturing all the things I would do if I could go back in time. Eventually, I came to understand that these desires were myths that I had more control over the illness than I did. It still comes up now and then, but I ignore it and focus on the far more productive task of looking to the future and enjoying the good parts of the present. As your teen’s symptoms begin to stabilize, look for positive moments, even if its just watching a favorite family movie one night. Good things lie ahead even when there is an illness to be dealt with.

Frustration and Anger

No matter how hard we try to be positive, most of us wish our child could be at a better level of recovery. We do our best, but we may become frustrated and angry. Anger is a primitive emotion that can soothe us because it refocuses our attention. Unfortunately, we may lash out at the wrong person, whether it be our spouse or the grocery store clerk. Without a target, anger cannot thrive, so we may look for one, even if our logic is far-reaching. The real source of our anger is, of course, the disease. There is an old cliche that goes, “Living well is the best revenge.” Sometimes, when I feel depression or anger rise, I make a list of all the positive things my son or daughter still has, including a loving family.

If you find you cannot stop grieving, try to choose a time of day to release your feelings. You may cry, write in a journal, talk to your spouse, or just sit and shake your head in disbelief. It is okay to let your feelings surface and to acknowledge them. After that, try to set them aside for the next part of your day. If it resurfaces, set it aside again. You will get better at it with practice. This method is not for everyone, but for some people it allows them to grieve while getting on with those parts of the day that can still be positive for them and their families.

Most of us eventually realize that all is not lost. In time, we learn to alter our expectations in order to cope with the new reality. We feel grateful that our child is still alive. In the stunning moment in which I learned that my son had tried to commit suicide, I experienced three thoughts in the flash of a second. First was disbelief, followed by the sense that it explained his recent withdrawal. Finally, I realized that I had been granted an amazing privilege: the opportunity to save my son. Whenever I feel angry or depressed about my children’s illnesses, I remember this gift I was given, and I never take it for granted.


11
Mar 25

Caregiver Burnout Does Not Mean Not Caring

Teenager“Mentally tell yourself “Stop!” whenever you catch yourself ruminating. It won’t work the first time or the second time, but if you do it often enough, more time will elapse between each event until it finally recedes.”

The symptoms of caregiver burnout are strikingly similar to those of depression: withdrawal from social activities, irritability, hopelessness, changes in appetite, weight, or sleep, and exhaustion. I personally realized I was experiencing burnout when I kept making silly mistakes, forgetting things, and having trouble making plans or decisions. I found I wasn’t handling even tiny disappointments well and couldn’t seem to bounce back from the setbacks of my kids’ illnesses. I was losing my resiliency. That worried me because I still cared deeply, and I knew I needed to function and feel better in order to look after my family.

Caregiver burnout does not mean not caring. Rather, it is a signal to pay attention to ourselves. Here are a few strategies for getting your own mental health back on track.

Start With Your Health

It may be simplest to start by addressing any physical complaints that have accrued. It is a good time to see your physician for a check-up, possibly blood work, and a discussion of your ailments. It is possible that you may need medicine to address any depression or anxiety you have developed. For a caregiver, this can be a devastating notion. We do not want to be the sick ones because we have a teen to look after. But using a little bit of medicine for a short time, under the guidance of a doctor, can help you get back on track faster.

Try to get back into an exercise routine, even if it is only a twenty-minute walk after lunch. Getting out of the office or house will clear your head, and getting your heart pumping will immediately make you feel better. Establishing even this small routine of self-care will help to make you feel more in control of your situation.

If you have been drinking caffeine or eating sugar for energy, see if you can cut back now. Tackle just one thing. For example, if you’ve been eating primarily carbohydrates, try to make just one meal a day include more protein and vegetables and less sugar or starch. The good food you consume will reinforce that you are doing something good for yourself. Keep in mind that caffeine and sugar are addictive, so the less you have of them, the less you crave them. Be patient with yourself while you cut back. In a couple of weeks, the cravings will subside.

Make Time for Your Spouse or Friend

If you are married, you may feel that you and your spouse have drifted apart during your teen’s crisis. Try scheduling a weekly date night or even something simple like a Sunday morning walk. Similarly, you may want to reconnect with a special friend whom you’ve drifted apart from while your teen was ill. If you feel you need to explain your absence, simply say that you were in crisis with your teen but that things are better now and you’ve missed him/her.

Rebuild Your Job

Many parents find that they do not feel the same about their job once their teen becomes ill. Perhaps you need more flexibility or you want to be closer to home. If your teen is beginning to stabilize, why not put your resume together and send it out? It may take several months before a job change materializes, but the hope of a fresh start can be encouraging, especially if you are spending time focusing on your strengths.

Improve Your Mental Health

Until now, you may have been working with your teen’s therapist. But maybe it is time for you to see your own therapist, who can help you process what you have been through. Your teen’s therapist may be able to recommend someone who can help. Some parents find that they are comfortable with one of the therapists that didn’t work out for their teen and they give them a try.

Stop Worrying

Some parents find that they have developed a habit of worrying. You may catch yourself fretting about things that could happen to your teen. If you can honestly say that you’re doing everything you can to help your teen, replace the worry with something more positive and realistic. You may be able to picture your teen where they are at the moment: with friends in their room or in band after school. Remind yourself to enjoy the way things are now.

Be firm with yourself when you notice your thoughts turning to doom. Mentally tell yourself “Stop!” whenever you catch yourself ruminating. It won’t work the first time or the second time, but if you do it often enough, more time will elapse between each event until it finally recedes.

Establish a Soothing Routine

When my daughter was going through a difficult relapse, she gave me all of the Jane Austen DVD’s for Christmas. I found that watching these humorous stories wherein the heroine’s greatest struggle is to find a husband was a nice respite from my complicated problems at home. You may be able to find a routine that helps you relax, such as reading the evening newspaper or going for a walk after dinner.

Take Your Mind off of Everything

There are a few activities in which you simply must forget all of your problems for the hour or so that you do them. For example, swimming or an exercise class. You could also take a course in cooking or something else that is fun. Your local high school or community center may offer some enjoyable options that are close to home. If you don’t want to go out, a hobby at home such as painting or playing a musical instrument can help you to forget your troubles. It will also make you more interesting to your teen and to your family. After all, you have to be more than just a caregiver.

Make a List

While you go through your own convalescence, so to speak, make a list of all the good things in your life. You can do this daily, if you like, maybe before you go to sleep. Throughout the day, if you feel sad or stressed, ask yourself to focus on one thing that is working for your teen right now. Focus on this as you go about your activities. Maybe someone will smile at you, thinking that you are smiling at them.

Finally, be honest with yourself about your expectations of both yourself and your teen. If you focus too much on what still needs to be fixed, you will miss out on celebrating the high points of your teen’s success. If you have found that your teen’s progress seems slow or inadequate, perhaps it’s time to re-calibrate your expectations. For example, rather than expecting your teen to be well enough to return to school this coming semester, plan on her returning the following semester. One of the best pieces of advice I ever got was to simply change my expectations. It works wonders.